Survivor Views

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Three Cancer Survivors

Cancer Survivors’ Views Make a Difference

Survivor Views is a groundbreaking program designed to further engage cancer survivors in the important policy issues that are part of ACS CAN’s fight against cancer.  Over 3,000 cancer survivors have agreed to participate in Survivor Views by responding to regular surveys on policy issues that support the prevention, detection and treatment of cancer and promote survivors’ quality of life.

Through Survivor Views, ACS CAN hears directly from cancer survivors about their experiences and their perspectives on critical cancer-related issues.  This information helps shape the development of policy positions and provides important evidence to support the enactment of these policies.

51%

of cancer patients and survivors have gone into debt to cover the cost of their cancer care.

View the survey findings

Latest Updates

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New Study Underscores Importance of Pharmacogenomic Testing to Patients and Finds Many Aren’t Aware of the Benefits

August 14, 2025
National

A new ACS CAN study released in the Journal of the American Medical Association (JAMA) finds many patients aren’t made aware of the importance of pharmacogenomic (PGx) testing. A form of biomarker testing, PGx testing examines how variations in a patient’s inherited genes may impact how they respond to different drugs and can improve the effectiveness of treatment and reduce the risk of adverse drug reactions.

Survey Finds Almost One-third of Adults Have Been More Than One Year Behind on Cancer Screenings

May 14, 2025
National

A new survey by the American Cancer Society Cancer Action Network (ACS CAN) found that 31% of adults have been more than one year behind on cancer screenings.

Congressional Budget Cuts to Medicaid would Harm Cancer Patients and Their Families

February 12, 2025
National

The Senate Budget Committee is scheduled to mark up its budget resolution this week, setting the stage for significant cuts in discretionary spending to offset the cost of the package.

New Survey Finds Failing to Extend Enhanced Tax Credits for Marketplace Plans Would Have Significant Negative Impact on Cancer Patients and Survivors

January 28, 2025
National

Eighty-six percent of cancer patients and survivors who receive tax credits to afford Marketplace plans say they would have difficulty getting the care they need without the enhanced premium tax credits, according to the latest Survivor Views survey from ACS CAN.

Survivor Views Resources

Survivor Views on the Composition of Clinical Trials

October 9, 2023

Representation is important to cancer patients and survivors when it comes to the composition of clinical trials, with patients saying it is important that drugs are tested among patients who share their gender, age, and general health. Women consider it more important that drugs be tested in patients who share their gender than do men, while people of color are most concerned about representation in clinical trials.

Survivor Views: Discrimination Among LGBTQ+ Cancer Patients

June 26, 2023

Half of Lesbian, Gay, Bisexual, Transgender, and Queer/Questioning (LGBTQ+) cancer patients and survivors report they are concerned about facing discrimination in a health care setting. More than one-third have experienced discrimination in a healthcare setting, with significant impacts on their care.

Survivor Views: Majority Less Likely to Get Recommended Screenings if Coverage is Lost

May 11, 2023

Our latest survey finds that cancer patients and survivors would be less likely to stay current with preventive care, including recommended cancer screenings, if the provision requiring these services be covered at no cost were repealed. This survey also explores the challenges of limited provider networks and the need for patient navigation.

Survivor Views: Open Enrollment

February 16, 2023

Cancer patients and survivors must balance reducing their health care costs with ensuring they have comprehensive coverage of services, treatments, and care providers.

Survivor Views: Patient Satisfaction by Gender

October 11, 2022

Our latest survey finds that female cancer patients are less satisfied with the quality of their cancer care than male cancer patients and are more likely to report that their symptoms were not taken seriously and that they had to prove their symptoms to providers.

Survivor Views: Copay Assistance and Patient Navigation

July 18, 2022

Prescription drug costs are a significant burden on cancer patients and survivors, sometimes even leading patients to miss or delay taking prescribed medications. The latest Survivor Views survey explores the role copay assistance programs can play in reducing this burden, and also addresses patient navigation and digital therapeutics.