Childhood Cancer Research

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About 9,550 children in the United States under the age of 15 will be diagnosed with cancer in 2025. An estimated 1,050 children under the age of 15 are expected to die from cancer in 2025.   

Group of advocates in yellow for childhood cancer action day

In February, ACS CAN volunteers joined other cancer patients, survivors and family members from 40 states and the District of Columbia in the nation’s capital for the 15th Annual Alliance for Childhood Cancer Action Days, a two-day event organized by the Alliance for Childhood Cancer, of which ACS CAN is a member. 

Participants asked lawmakers to continue funding the Childhood Cancer Survivorship, Treatment, Access and Research (STAR) Act to improve the quality of life of childhood cancer patients, survivors and their families.  They also asked lawmakers to support the Accelerating Kids’ Access to Care ACT, the Creating Hope Reauthorization Act, and the RARE Act. Additionally, they urged Congress to continue to make strong investments in the National Institutes for Health and the National Cancer Institute to help advance discoveries in the fight against childhood cancer.

Cancer is the leading disease-related cause of death for children aged 1-19.

While cancer is much rarer in children compared to adults, the disease can take a tremendous toll because it strikes so early in life and survivors face high rates of late effects that can last a lifetime.

Read the Childhood Cancer Landscape Report

Latest Updates

September 29, 2025

Through persistence and partnership, Sahil helped pass a bill that created California’s first dedicated state fund for pediatric cancer research. At only seventeen years old, Sahil Mehta, Legislative Ambassador with ACS CAN California, led the charge to champion childhood cancer research in his state and made an undeniable impact in

July 31, 2025
National

Today, the U.S. Senate Committee on Appropriations considered and approved its draft FY26 appropriations bill that includes increases for the National Institutes of Health (NIH) and increases for federal cancer research funding at the National Cancer Institute (NCI).

February 13, 2025
National

Today, the House Budget Committee began to mark up their budget resolution for Fiscal Year 2025.

February 12, 2025
National

The Senate Budget Committee is scheduled to mark up its budget resolution this week, setting the stage for significant cuts in discretionary spending to offset the cost of the package.

Childhood Cancer Research Resources

As Congress and the administration consider changes to federal spending that could severely cut Medicaid funding and impact state budgets, some facts are getting lost in the debate.

ACS CAN has endorsed the Give Kids A Chance bill and has joined the Alliance for Childhood Cancer in calling on Congress to pass this legislation.  The bill would restore import incentives to developing drugs for children with cancer. 

ACS CAN has endorsed the Accelerating Kids' Access to Care Act, and through the Alliance for Childhood Cancer, has sent a support letter to Congress.