Survivor Views

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Three Cancer Survivors

Cancer Survivors’ Views Make a Difference

Survivor Views is a groundbreaking program designed to further engage cancer survivors in the important policy issues that are part of ACS CAN’s fight against cancer.  Over 3,000 cancer survivors have agreed to participate in Survivor Views by responding to regular surveys on policy issues that support the prevention, detection and treatment of cancer and promote survivors’ quality of life.

Through Survivor Views, ACS CAN hears directly from cancer survivors about their experiences and their perspectives on critical cancer-related issues.  This information helps shape the development of policy positions and provides important evidence to support the enactment of these policies.

51%

of cancer patients and survivors have gone into debt to cover the cost of their cancer care.

View the survey findings

Latest Updates

February 14, 2024
National

Protecting free preventive cancer screenings and reducing the burden of medical debt are the top issues of concern for cancer patients and survivors today, according to a new survey by the American Cancer Society Cancer Action Network (ACS CAN) that asked participants to select their leading policy priorities for the year.

October 19, 2023
National

The nation’s drug shortage crisis continues to affect cancer patients and survivors with 1 in every 10 (10%) reporting impacts to care, a majority of whom have had difficulties finding substitute medications (68%) and cited treatment delays (59%). The data is part of a new survey by the American Cancer Society Cancer Action Network (ACS CAN).

June 26, 2023
National

According to a new survey, half of Lesbian, Gay, Bisexual, Transgender, and Queer/Questioning (LGBTQ+) cancer patients and survivors report they are concerned they may face discrimination in a health care setting. More than one-third have experienced discrimination in a health care setting due to their sexual orientation or gender identity, and 75% of those who say they experienced discrimination feel it impacted their health care.

May 11, 2023
National

A majority (58%) of cancer patients and survivors say they would be less likely to remain current with their recommended preventive care if it came with a cost, according to a new survey by the American Cancer Society Cancer Action Network (ACS CAN). Over half (53%) of those surveyed quantified the cost that would present such a barrier at less than $200, with more than a quarter (28%) marking their threshold at $100.

Survivor Views Resources

Our latest survey finds that protecting no-cost screenings and preventive care and reducing the burden of medical debt are the most impotant priorities for cancer patients and survivors. This survey also explores the impacts of cancer on food and nutrition insecurity, with impacts felt across income groups and coverage levels.

The nation’s drug shortage crisis continues to affect cancer patients and survivors with 1 in every 10 (10%) reporting impacts to care, a majority of whom have had difficulties finding substitute medications (68%) and cited treatment delays (59%).

Our latest Survivor Views survey sees increases in biomarker testing since the question was last asked three years ago along with reduced cost and coverage barriers in that time. Cancer patients and survivors describe the benefits and overwhelmingly agree biomarker testing gave their providers information that improved their treatment. 

A recent survey of cancer patients and survivors finds that more than half experienced greater isolation as a result of their cancer diagnosis (52%) and treatment (57%), and the vast majority (89%) agree it would be helpful for friends and loved ones to have training in how best to support cancer patients.

Each person has a slightly different inherited genetic makeup that can cause different people to have different responses to the same drug. These differences may impact the effectiveness of a drug or the side effects a person may experience. Our latest survey explores concerns about drug reactions and awareness of PGx testing to help better understand a patient's potential drug response.

Representation is important to cancer patients and survivors when it comes to the composition of clinical trials, with patients saying it is important that drugs are tested among patients who share their gender, age, and general health. Women consider it more important that drugs be tested in patients who share their gender than do men, while people of color are most concerned about representation in clinical trials.




Survivor Views is made possible by support from Bristol Myers Squibb, Amgen, Merck, Pfizer, and Sanofi