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Ryan, now 6 years old, was born with a genetic disorder called CHARGE syndrome. The syndrome is rare and complex, and requires Ryan to have feeding and tracheostomy tubes and consistent nursing care.
Ryan’s dad has insurance for the family through his job – but the coverage is insufficient for someone with Ryan’s significant medical needs. Fortunately, Ryan qualifies to have Medicaid as his secondary insurance. Medicaid has covered what the private insurance company would not: replacement feeding tubes, home modifications like a generator for Ryan’s ventilator, and additional nursing hours that are necessary for Ryan.
“We’re not wanting a blank check,” Ryan’s mom, Melissa, said. “We’re just wanting the care he needs.”
Special thanks to NC Child for their partnership.
