Site Search

... this year, and the over 300 West Virginians currently diagnosed with a bleeding disorder. The American Cancer Society Cancer Action Network (ACS CAN), the West Virginia Chapter National Hemophilia Foundation (WVNHF) and their coalition partners commend the legislature for passing and Gov. ... Disease Advisory Council. This council will advise West Virginia state agencies, legislators, and other stakeholders engaged in the treatment of rare diseases, as well as promote the development of and access to effective treatments. Those West Virginians who face a rare disease often face unique challenges including delays in obtaining a ...